Upstate Biotech Accelerator

Katie Zilcosky / WAER News

Dozens of people with a rare condition marked by potentially cancerous tumors wrapped up a conference hosted by Upstate Medical University this weekend in Syracuse aimed at bringing together patients, physicians, and researchers to discuss the latest advancements in screening and treatment.   The disease is called pheochromocytoma paraganglioma, or pheo para for short.  Jenny Rowan of North Carolina was diagnosed in 2012.  She takes comfort in being able to connect with others who share the condition.